New to special needs planning? You’re in the right place. A special needs trust is simply a legal tool that lets your family set aside money for your loved one without putting their government benefits at risk. That’s it — that’s the core idea.
If you’re just starting to figure this out, I’d suggest reading our Parent Journeys guide first — it walks through the whole picture based on where you are right now. Then come back here for the Delaware-specific details.
Already know the basics? Keep scrolling — everything below is specific to Delaware.
Already know you need an attorney? Our guide to finding a special needs trust attorney has trusted directories, questions to ask, and what to expect.
You’re not alone in this. As a parent who’s navigated these waters for over 18 years with my autistic son, I know the fear that keeps you up at night — the worry that one wrong move could cost your child their benefits, their care, their future. Take a breath. You’ve found the right place, and Delaware actually has some real advantages when it comes to protecting your family.
Here’s everything you need to know about special needs trusts in Delaware — no legal jargon, just clear answers from a parent who’s been there.
Two Types of Special Needs Trusts
Before diving into the details, you need to understand the two main types of special needs trusts — because the rules are different for each:
Third-Party Trust
- Funded by: Family members (parents, grandparents, anyone except the beneficiary)
- Medicaid payback: None — remaining funds go to whoever you name
- Age limit: None
- Best for: Estate planning, setting aside money for your child’s future
First-Party Trust
- Funded by: The beneficiary’s own assets (inheritance, settlement, back pay)
- Medicaid payback: Yes — Medicaid is reimbursed first after death
- Age limit: Must be under 65 at creation
- Best for: Protecting an inheritance or settlement your loved one received directly
Delaware is widely known as America’s trust capital — its trust laws offer some of the strongest creditor protection in the country. That reputation benefits special needs families too. Not sure which type you need? In most cases, if you’re putting money aside for your child, that’s a third-party trust. If your child already has the money (from an inheritance, lawsuit, or other source), that’s a first-party trust.
What Delaware Families Need to Know (2026)
Every state handles special needs trusts a little differently. Here’s what matters most for Delaware families — whether you already have a trust or you’re just starting to look into one.
- 1. Delaware is America’s trust capital — and that benefits your family.
Delaware has some of the strongest trust laws in the country. A 2025 update (HB 103) specifically strengthened creditor protection for trust beneficiaries with discretionary interests — exactly the kind of protection a special needs trust needs. Your child’s trust assets are shielded from creditors under Delaware law more effectively than in most other states. - 2. Delaware is a 1634 state — SSI approval means automatic Medicaid.
If your child qualifies for SSI, they automatically qualify for Delaware Medicaid. No separate application, no additional paperwork. This is simpler than states where you have to apply to Medicaid separately with different criteria. - 3. Delaware Medicaid estate recovery is limited — but the rules depend on which type of trust you have.
(For third-party SNTs) — If you (the parent) set up a third-party trust, Delaware Medicaid can never touch it. Delaware limits estate recovery to assets that pass through probate — properly structured trusts bypass probate entirely. That’s stronger protection than states with expanded estate recovery.
(For first-party SNTs) — Different rule. Because this trust was funded with your family member’s own money, federal law (42 USC §1396p) requires that any funds left in the trust when they pass away must first reimburse Delaware Medicaid for benefits paid during their lifetime. This isn’t estate recovery — it’s a payback clause built into the trust itself. Whatever remains after Medicaid is repaid goes to the family. This is the tradeoff for protecting benefits during your family member’s life. - 4. Delaware has NO waitlist for developmental disability services.
This is enormous. Most states have waitlists stretching 5 to 15 years for disability services. Delaware’s DDDS Lifespan Waiver has no waitlist — eligible individuals can access services right away, with eligibility determined within 30 days of a complete application. If you haven’t applied yet, contact DDDS at 302-744-9700. - 5. If your child’s income exceeds the Medicaid limit, they need a Qualified Income Trust. (For first-party SNTs)
Delaware is an income cap state. If your child’s income is over about $2,485/month, they won’t qualify for Medicaid long-term care without a Qualified Income Trust (also called a Miller Trust). It’s a separate trust from the SNT, and your attorney needs to set it up. - 6. Delaware’s decanting statute lets you modify trusts without going to court.
Delaware was one of the first states to allow trust decanting (enacted 2003). If circumstances change — laws update, your child’s needs evolve — a trustee can move assets from one trust to a new one with better terms. No beneficiary consent required, no court approval in most cases. That flexibility is rare. - 7. The trust can pay for groceries without reducing your child’s SSI.
This changed in October 2024. Before that, buying food with trust money cut the SSI check. It doesn’t anymore. This is a big deal for day-to-day quality of life. - 8. The trust paying for housing DOES still reduce SSI.
Rent, mortgage, utilities — if the trust pays those, the SSI check goes down (up to about $351/month in 2026). That’s the tradeoff, and it’s worth understanding before your trustee starts writing checks. - 9. Delaware doesn’t require annual court reporting for most trusts.
Delaware’s Court of Chancery requires trustee accounts no more than once every two years — and for inter vivos (living) trusts, no filing is required at all unless the trust document says otherwise or a court orders it. Less paperwork, lower costs. - 10. Delaware has a real alternative to guardianship — and has since 2016.
When your child turns 18, you may need legal authority to help with decisions. Delaware was an early adopter of supported decision-making (SDM) law in 2016, with updates in 2017, 2019, and 2021. SDM lets your child keep their legal rights while getting help from trusted supporters — no court involvement required. If full guardianship is needed, the Court of Chancery also offers limited guardianship options that only restrict rights where truly necessary. - 11. The person managing the trust (the “trustee”) has to account for every dollar — no matter what type of trust you set up.
Whether you created a third-party trust (funded with your money) or your child has a first-party trust (funded with theirs), Delaware law (12 Del. C. § 3521) provides for trustee accountability through court-supervised accounting. Your family has the right to know how trust money is being spent. If a bank, attorney, or family member is serving as trustee and won’t show you where the money is going, that’s a red flag — and you can petition the Court of Chancery to compel an accounting.
Official sources: Delaware Medicaid (DMMA) · SSA Guide to Special Needs Trusts · Delaware Trust Code (Title 12, Ch. 35)
What Does a Special Needs Trust Cost in Delaware?
This is one of the first questions every family asks, and the honest answer is: it depends on your situation. Here are the typical ranges Delaware families should expect:
| Trust Type | Typical Attorney Fees | When You’d Use It |
|---|---|---|
| Third-party SNT (most common) | $2,000 – $4,000 | Parents/grandparents setting aside money for a loved one |
| First-party SNT | $4,000 – $5,000+ | Protecting an inheritance, settlement, or assets the person already owns |
| Pooled trust | $0 – $5,000 enrollment | Smaller amounts or no family member to serve as trustee (see below) |
| Medicaid Waiver Waitlists by State | How long the wait is in every state, which states have no waitlist, and what to do while you wait | |
| What Does My Family Need? — Free Assessment | Answer 10 questions and get a personalized special needs planning action plan for your state |
Beyond attorney fees, budget for ongoing costs: trustee fees if you’re using a professional trustee (typically 1–2% of trust assets annually), annual tax preparation ($500–$1,500), and investment management. These costs are real, but they’re a fraction of what your family could lose if assets aren’t properly protected.
A note about Delaware’s small attorney pool: Delaware has fewer special needs trust attorneys than larger states. Many families in northern Delaware work with Philadelphia-area specialists, which can actually expand your options. If cost is a barrier, pooled trusts offer professional management with lower minimums — see the Delaware programs below.
Delaware Pooled Trust Programs
If setting up an individual trust isn’t in the budget right now, a pooled trust can be a practical alternative. Your sub-account is managed alongside others by a nonprofit, which means lower costs and professional oversight. Here are programs available to Delaware families:
| Program | Minimum Deposit | Fees | Notes |
|---|---|---|---|
| Delaware CarePlan | $5,000 | Contact for details | Delaware’s own pooled trust (Title 12, Ch. 40); individualized care plans; first-party and third-party sub-accounts. Call 302-633-4000 |
| Commonwealth Community Trust | Contact for details | Contact for details | National nonprofit serving Delaware; first-party and third-party options; established 2000 |
| PLAN of Pennsylvania | Contact for details | Contact for details | Serves PA, NJ, and DE; Planned Lifetime Assistance Network member |
Before enrolling, ask how remainder funds are handled after the beneficiary’s death — some pooled trusts retain a portion. For first-party pooled trusts, Medicaid payback applies. For a deeper look at how pooled trusts work and when they make sense, see our complete pooled trusts guide.
Mistakes Delaware Families Make
From my 15+ years helping families (including my own):
- Leaving money directly to your disabled child. A well-meaning grandparent leaves $50,000 in a will to your child — and destroys their SSI and Medicaid. Delaware’s $2,000 asset limit means even a small direct inheritance can wipe out benefits. Every dollar meant for your child needs to go through the trust, not to them.
- Not leveraging Delaware’s trust-friendly laws. Delaware is the trust capital of America, but most families don’t know what that means for them. Delaware’s strong creditor protection, flexible decanting, and no-tax-on-out-of-state-beneficiaries rules give your trust more protection than the same trust in most other states. Make sure your attorney is using these advantages.
- Creating the trust but never funding it. A trust sitting in a drawer with no assets in it protects nothing. The trust only works if you actually move assets into it — bank accounts, life insurance beneficiary designations, your will. This is the most common mistake I see.
- Not applying to DDDS because you don’t need services yet. Delaware has no waitlist for developmental disability services right now — but that doesn’t mean you should wait. Eligibility must be established, and having DDDS services in place gives your family a safety net. Apply at 302-744-9700.
- Using a Philadelphia attorney who doesn’t know Delaware law. Many Delaware families cross the border for legal help, and that’s fine — but make sure your attorney understands Delaware’s specific trust code, Court of Chancery procedures, and Medicaid rules. Pennsylvania and Delaware handle estate recovery, guardianship, and trust administration differently.
- Not realizing first-party trusts pay Medicaid back at death. If the trust was funded with your child’s own money (from a settlement, inheritance, or work), Delaware Medicaid gets reimbursed from whatever is left when your child dies. This is why moving money into a DEPENDABLE (ABLE) account matters — though Delaware does require Medicaid payback on ABLE accounts too (see below).
- Waiting until after you die to set up the trust. If you’re reading this page, do it now. Not next year. Your estate plan, your will, your life insurance beneficiary designations — all of it needs to point to the trust before something happens to you.
The best way to avoid these mistakes? Work with an attorney who knows Delaware special needs law. Find Delaware attorneys →
Delaware’s ABLE Savings Program
A special needs trust is one piece of the picture. Delaware’s ABLE program is called DEPENDABLE, administered by the Delaware State Treasurer’s Office. ABLE accounts let your loved one save up to $100,000 without jeopardizing SSI — and they’re much simpler to open than a trust. Delaware offers a state income tax deduction of $5,000 (single filers) or $10,000 (joint filers) for ABLE contributions — one of the strongest ABLE tax benefits in the country.
Important: Delaware follows the federal ABLE Medicaid payback requirement. If your child receives Medicaid services after opening a DEPENDABLE account, Delaware Medicaid can file a claim against the account balance at death for the amount of services paid after the account was opened. This is different from states like Florida and Oregon that have waived ABLE Medicaid payback entirely. Factor this into your planning.
Many families use ABLE for day-to-day expenses (therapy, equipment, activities) and an SNT for larger amounts (inheritance, settlements). Starting January 1, 2026, the ABLE Age Adjustment Act expanded eligibility to individuals whose disability began before age 46 (up from 26) — opening access to millions more people. Use our calculator to see which combination fits your situation:
🧮 Do You Need a Special Needs Trust, ABLE Account, or Both?
Answer a few quick questions for a recommendation based on your situation.
For the full breakdown — eligibility, contribution limits, qualified expenses, and how ABLE works alongside a trust — see our complete ABLE accounts guide.
Beyond the Trust: Other Delaware Planning Steps
Guardianship: When your child turns 18, you may need legal authority to help with decisions. Delaware offers supported decision-making (since 2016), limited guardianship, and full guardianship through the Court of Chancery. Compare your options →
DDDS Services: Delaware has no waitlist for developmental disability services — apply through DDDS (302-744-9700) even if you don’t need services today. Learn about waivers →
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Send them this page ahead of time. It shows you've done your homework on Delaware's specific rules — and it helps your attorney prepare for a more productive first meeting.
Find a Special Needs Trust Attorney in Delaware
You’ve done your homework. You understand your options. Here’s the honest truth: setting up a special needs trust is not a DIY project. One wrong clause can disqualify your child from the benefits they depend on. You need an attorney who specializes in this — not a general estate planner, not the lawyer who did your will.
Get Connected with a Delaware Special Needs Attorney
We can help you find a qualified special needs planning attorney in your area who understands Delaware’s rules and will protect your family’s benefits.
Attorney matching service coming soon. In the meantime, use the directories below or email us and we’ll point you in the right direction.
Research on your own:
- Special Needs Alliance — national directory of attorneys focused on disability and public benefits law (1 Delaware member: William W. Erhart, CELA, in Wilmington/Millsboro)
- Academy of Special Needs Planners — searchable directory of special needs planning attorneys
- Delaware Court of Chancery — trust and guardianship jurisdiction; resources for families
- Delaware State Bar Association — lawyer referral service for elder law and estate planning
- Community Legal Aid Society (CLASI) — free legal services including Disability Rights Delaware program, (302) 575-0690
Not sure what to ask or what to expect? Our complete guide to finding an SNT attorney walks through the questions you should ask, the red flags to watch for, and how the process typically works.
Recent Delaware Updates
Last reviewed: February 2026
- January 2026: ABLE Age Adjustment Act takes effect — disability onset age expanded from 26 to 46, making millions more people eligible for ABLE accounts.
- August 2025: Delaware Trust Act 2025 (HB 103) signed — strengthened creditor protection for discretionary trust beneficiaries and clarified that beneficiaries cannot compel distributions.
- October 2024: SSA eliminates food from in-kind support and maintenance calculations — trusts can now pay for groceries without reducing SSI.
- 2024: Protect Medicaid Act (SB 13) signed — largest Medicaid funding increase since ACA expansion, generating $100M+ in new funding for Delaware Medicaid programs.
- Ongoing: Delaware continues with no DDDS waiver waitlist — one of the few states where eligible individuals can access developmental disability services immediately.
Laws and programs change. If you spot something outdated on this page, let us know at randy@specialneedstrustbystate.com — we review every correction and update promptly.
Last updated: February 2026. I review Delaware’s rules quarterly and update this page whenever regulations change. Bookmark it.
Go Deeper: Comprehensive Special Needs Planning Guides
Your state rules matter — but the planning doesn’t stop there. These guides cover everything you need to protect your family:
| Special Needs Trusts: The Complete Guide | Types of trusts, setup process, costs, trustee selection, and the mistakes that cost families everything |
| ABLE Accounts Explained | Eligibility (2026 age expansion), contribution limits, qualified expenses, and state program comparison |
| Government Benefits: SSI, SSDI & Medicaid | How benefits work, coordination with trusts, work incentives, and the age 18 transition |
| Funding Strategies | Life insurance, gifts, settlements, retirement accounts — how to actually fund your plan |
| Letter of Intent | The document that tells future caregivers who your child really is — section-by-section guide |
| Life Planning: Guardianship, Housing & Transition | Guardianship options, housing choices, the age 18 cliff, and employment |
| Parent Journeys | Real questions and experiences from families navigating life with a special needs child |
| Find a Special Needs Trust Attorney | Trusted directories, questions to ask, red flags, and what to expect from the process |

