New to special needs planning? You’re in the right place. A special needs trust is simply a legal tool that lets your family set aside money for your loved one without putting their government benefits at risk. That’s it — that’s the core idea.
If you’re just starting to figure this out, I’d suggest reading our Parent Journeys guide first — it walks through the whole picture based on where you are right now. Then come back here for the North Dakota-specific details.
Already know the basics? Keep scrolling — everything below is specific to North Dakota.
Already know you need an attorney? Our guide to finding a special needs trust attorney has trusted directories, questions to ask, and what to expect.
You’re not alone in this. As a parent who’s navigated these waters for over 18 years with my autistic son, I know the fear that keeps you up at night — the worry that one wrong move could cost your child their benefits, their care, their future. Take a breath. You’ve found the right place, and North Dakota has some real advantages for families like ours — along with a few traps you need to know about.
Here’s everything you need to know about special needs trusts in North Dakota — no legal jargon, just clear answers from a parent who’s been there.
Two Types of Special Needs Trusts
Before diving into the details, you need to understand the two main types of special needs trusts — because the rules are different for each:
Third-Party Trust
- Funded by: Family members (parents, grandparents, anyone except the beneficiary)
- Medicaid payback: None — remaining funds go to whoever you name
- Age limit: None
- Best for: Estate planning, setting aside money for your child’s future
First-Party Trust
- Funded by: The beneficiary’s own assets (inheritance, settlement, back pay)
- Medicaid payback: Yes — Medicaid is reimbursed first after death
- Age limit: Must be under 65 at creation
- Best for: Protecting an inheritance or settlement your loved one received directly
North Dakota follows the Uniform Trust Code (NDCC Title 59), which gives trustees clear rules for managing trust assets — including spendthrift protections that help shield trust funds from creditors. Not sure which type you need? If you’re putting money aside for your child, that’s a third-party trust. If your child already has the money (from an inheritance, lawsuit, or other source), that’s a first-party trust.
What North Dakota Families Need to Know (2026)
Every state handles special needs trusts a little differently. Here’s what matters most for North Dakota families — whether you already have a trust or you’re just starting to look into one.
- 1. SSI does NOT automatically qualify your child for Medicaid in North Dakota.
This catches families off guard. North Dakota is one of only about 11 states — called a “209(b) state” — where getting SSI does not mean you automatically get Medicaid. You have to apply for Medicaid separately, and the state uses its own eligibility rules. The asset limit is $3,000 (higher than SSI’s $2,000), but the extra step means more paperwork and potential delays. Don’t assume your child is covered just because they receive SSI. - 2. North Dakota has one of the most aggressive Medicaid estate recovery programs in the country — and the rules depend on which type of trust you have.
(For third-party SNTs) — Under NDCC 50-24.1-07, North Dakota can recover from joint tenancy property, life estates, living trusts, transfer-on-death accounts, and even assets transferred to a spouse at any time during the marriage. The ND Supreme Court has interpreted this broadly. A properly drafted irrevocable third-party special needs trust is one of the few tools that can protect assets from this reach.
(For first-party SNTs) — Different rule. Because this trust was funded with your family member’s own money, federal law (42 USC §1396p) requires that any funds left in the trust when they pass away must first reimburse North Dakota Medicaid for benefits paid during their lifetime. This isn’t estate recovery — it’s a payback clause built into the trust itself. Whatever remains after Medicaid is repaid goes to the family. This is the tradeoff for protecting benefits during your family member’s life. - 3. If your family has oil or mineral rights, your trust needs special language.
This is unique to North Dakota. The Bakken formation means many families own mineral rights — and Medicaid has specific valuation formulas: producing minerals are valued at 3x annual royalty income, leased but not producing at 2x the lease amount. Royalty income counts as both income and an asset for Medicaid purposes. If mineral rights pass to your disabled child through inheritance without a trust, those rights alone could disqualify them from benefits. - 4. North Dakota’s trust income tax rate is among the lowest in the country.
The state taxes trust income at just three brackets: 0% on the first $4,000, 1.95% on income up to $10,750, and a maximum of 2.50% above that. Compare that to California (13.3%), New York (10.9%), or even neighboring Minnesota (9.85%). There’s also no state estate tax and no inheritance tax — both were repealed years ago. This tax-friendly environment is a genuine advantage for trust planning. - 5. North Dakota’s DD waiver has essentially no waitlist.
This is remarkable. Most states have waitlists measured in years — sometimes decades. North Dakota’s traditional IID/DD waiver has 4,365 slots serving approximately 4,302 people, with little to no waiting. The state also added a new Autism Spectrum Disorder waiver in late 2025 for children birth through age 20. If you haven’t applied for waiver services, do it now — North Dakota is one of the few states where you can actually get them. - 6. North Dakota doesn’t have its own ABLE savings program.
North Dakota is one of only four states without a state-run ABLE program. The Bank of North Dakota assessed the costs and decided residents would get lower fees and more investment options through out-of-state plans. Your loved one can open an account in any state that accepts non-residents — Ohio’s STABLE Account and CalABLE are popular choices. There’s no state tax deduction for ABLE contributions since there’s no state plan. - 7. The trust can pay for groceries without reducing your child’s SSI.
This changed in October 2024. Before that, buying food with trust money cut the SSI check. It doesn’t anymore. This is a meaningful improvement for families using trusts to cover daily living costs. - 8. The trust paying for housing DOES still reduce SSI.
Rent, mortgage, utilities — if the trust pays those, the SSI check goes down (up to about $351/month in 2026). That’s the tradeoff, and it’s worth understanding before your trustee starts writing checks. - 9. Existing trusts can be updated without going to court.
North Dakota allows trust decanting under NDCC Chapter 59-16.1 (enacted 2017). If you have an older trust that doesn’t account for the 2024 food rule change, the ABLE age expansion, or other updates, a trustee with discretionary authority can restructure it into a new trust with updated terms. It requires 60-day notice to beneficiaries, but no court approval. This can save thousands in legal fees. - 10. North Dakota is creating a new Office of Guardianship — a major reform starting in 2026.
Senate Bill 2029 creates an independent Office of Guardianship and Conservatorship with powers to license and register professional guardians, investigate complaints, and take disciplinary action. It takes effect in early 2026. North Dakota also has a supported decision-making law (since 2019, NDCC 30.1-36) that courts must consider before appointing a guardian. In North Dakota, a “guardian” handles personal decisions and a “conservator” handles finances — these are separate appointments. - 11. The person managing the trust (the “trustee”) has to account for every dollar — no matter what type of trust you set up.
Whether you created a third-party trust (funded with your money) or your child has a first-party trust (funded with theirs), North Dakota law (N.D. Cent. Code § 59-16-13) gives your family the right to request a full accounting of how trust money is being spent. This isn’t optional — it’s the law. If a bank, attorney, or family member is serving as trustee and won’t show you where the money is going, that’s a red flag.
Official sources: North Dakota Medicaid (HHS) · SSA Guide to Special Needs Trusts · North Dakota Uniform Trust Code (Title 59)
What Does a Special Needs Trust Cost in North Dakota?
This is one of the first questions every family asks, and the honest answer is: it depends on your situation. Here are the typical ranges North Dakota families should expect:
| Trust Type | Typical Attorney Fees | When You’d Use It |
|---|---|---|
| Third-party SNT (most common) | $2,500 – $4,500 | Parents/grandparents setting aside money for a loved one |
| First-party SNT | $4,000 – $6,000+ | Protecting an inheritance, settlement, or assets the person already owns |
| Pooled trust | $800 – $1,200 enrollment | Smaller amounts or no family member to serve as trustee (see below) |
| Medicaid Waiver Waitlists by State | How long the wait is in every state, which states have no waitlist, and what to do while you wait | |
| What Does My Family Need? — Free Assessment | Answer 10 questions and get a personalized special needs planning action plan for your state |
Beyond attorney fees, budget for ongoing costs: trustee fees if you’re using a professional trustee (typically 1–2% of trust assets annually), annual tax preparation ($500–$1,500), and accounting. Fargo and Bismarck attorneys tend to be at the higher end; rural areas somewhat lower. North Dakota attorney fees are generally below national averages due to the lower cost of living.
If cost is a barrier, pooled trusts offer professional management starting with lower enrollment costs — see the North Dakota programs below.
North Dakota Pooled Trust Programs
If setting up an individual trust isn’t in the budget right now, a pooled trust can be a practical alternative. Your sub-account is managed alongside others by a nonprofit, which means lower costs and professional oversight. Here are the programs serving North Dakota families:
| Program | Minimum Deposit | Fees | Notes |
|---|---|---|---|
| GAPS Inc — ND Pooled Trust (Guardian and Protective Services, Minot) | Contact for details | Contact GAPS for fee schedule (701-222-6600) | North Dakota-based; first-party (d)(4)(C) trust; payments made on behalf of beneficiary |
| Lutheran Social Service of MN Pooled Trust | $1,000 initial deposit | $800–$1,200 joinder + sliding asset fee + hourly trustee | Serves both MN and ND; first-party AND third-party options; 600+ individuals served; $4M+ in annual disbursements |
| Commonwealth Community Trust | $5,000 (pooled SNT); $8,000 (settlement preservation) | Enrollment + annual administration | National program accepting ND residents; first-party pooled trust including for individuals 65+ |
Before enrolling, ask how remainder funds are handled after the beneficiary’s death — first-party pooled trusts must reimburse Medicaid, and some retain a portion of remainder funds for the nonprofit. For a deeper look at how pooled trusts work and when they make sense, see our complete pooled trusts guide.
Mistakes North Dakota Families Make
From my 15+ years helping families (including my own):
- Not realizing SSI doesn’t mean Medicaid in North Dakota. In most states, getting SSI automatically qualifies your child for Medicaid. Not here. North Dakota is a 209(b) state with separate Medicaid eligibility rules. Families who assume they’re covered find out the hard way when services are denied. Apply for Medicaid separately — don’t wait.
- Ignoring mineral rights in your estate plan. This is the single biggest North Dakota-specific trap. If grandpa’s mineral rights pass to your disabled child through a will or intestacy, Medicaid values producing minerals at 3x annual royalty income. Even modest mineral interests can push your child over the $3,000 asset limit instantly. Those rights need to go through the trust.
- Thinking a TOD deed or joint tenancy protects assets from Medicaid. In many states, transfer-on-death deeds and joint tenancy avoid probate and estate recovery. Not in North Dakota. The state’s expanded recovery law (NDCC 50-24.1-07) reaches all of these. The only reliable protection is a properly drafted special needs trust.
- Leaving money directly to your disabled child. A well-meaning grandparent leaves $50,000 in a will to your child — and destroys their Medicaid and SSI eligibility. In North Dakota, the Medicaid asset limit is just $3,000. Every dollar meant for your child needs to go through the trust, not to them.
- Using a generic trust template instead of a North Dakota attorney. North Dakota follows the Uniform Trust Code, but it also has unique rules around mineral rights, expanded estate recovery, and agricultural land that a template from the internet won’t address. The state’s anti-corporate farming law has specific trust exceptions (NDCC 10-06.1-09) that must be properly structured.
- Not knowing that farmland CAN go into a special needs trust. North Dakota’s anti-corporate farming law prohibits most corporate farmland ownership, but trusts for the benefit of an individual are specifically exempted. If your family has agricultural land, a properly drafted SNT can hold it — but the trust language matters. Get this wrong and the farmland could be challenged.
- Waiting until after you die to set up the trust. If you’re reading this page, do it now. Not next year. Your estate plan, your will, your life insurance beneficiary designations — all of it needs to point to the trust before something happens to you.
The best way to avoid these mistakes? Work with an attorney who knows North Dakota special needs law. Find North Dakota attorneys →
North Dakota’s ABLE Savings Program
A special needs trust is one piece of the picture. North Dakota doesn’t have its own ABLE program — the Bank of North Dakota assessed the costs and determined residents would get lower fees and more investment options through out-of-state plans. Your loved one can open an ABLE account in any state that accepts non-residents. Popular choices include Ohio’s STABLE Account and CalABLE. ABLE accounts let your loved one save up to $100,000 without jeopardizing SSI, and as of January 2026, eligibility expanded to include people whose disability began before age 46 (up from 26).
There’s no North Dakota state tax deduction for ABLE contributions since there’s no state plan. But the money still grows tax-free and withdrawals for qualified disability expenses are tax-free.
Heads up on ABLE Medicaid payback:
Given North Dakota’s expanded estate recovery posture, the state likely exercises its right to file Medicaid claims against ABLE account balances at death. Ask about this before opening an account — and coordinate ABLE savings with your trust strategy.
Many families use ABLE for day-to-day expenses (therapy, equipment, activities) and an SNT for larger amounts (inheritance, settlements, mineral royalties). Use our calculator to see which combination fits your situation:
🧮 Do You Need a Special Needs Trust, ABLE Account, or Both?
Answer a few quick questions for a recommendation based on your situation.
For the full breakdown — eligibility, contribution limits, qualified expenses, and how ABLE works alongside a trust — see our complete ABLE accounts guide.
Beyond the Trust: Other North Dakota Planning Steps
Guardianship: When your child turns 18, you may need legal authority to help with decisions. North Dakota uses “guardian” for personal decisions and “conservator” for finances — these are separate appointments. The state has a supported decision-making law (2019) that courts must consider first. A new Office of Guardianship and Conservatorship (SB 2029) launches in 2026 to license and oversee professional guardians. Compare your options →
Medicaid Waivers: North Dakota’s DD waiver has essentially no waitlist (4,365 slots) — rare among states. A new Autism Spectrum Disorder waiver (ages 0–20) launched in late 2025. Apply through ND HHS at (701) 328-4630. Learn about waivers →
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Send them this page ahead of time. It shows you've done your homework on North Dakota's specific rules — and it helps your attorney prepare for a more productive first meeting.
Find a Special Needs Trust Attorney in North Dakota
You’ve done your homework. You understand your options. Here’s the honest truth: setting up a special needs trust is not a DIY project. One wrong clause can disqualify your child from the benefits they depend on. You need an attorney who specializes in this — not a general estate planner, not the lawyer who did your will. This is especially important in North Dakota, where mineral rights, agricultural land, and expanded estate recovery create planning issues that most states don’t have.
Get Connected with a North Dakota Special Needs Attorney
We can help you find a qualified special needs planning attorney in your area who understands North Dakota’s unique rules — including mineral rights, agricultural land, and expanded estate recovery — and will protect your family’s benefits.
Attorney matching service coming soon. In the meantime, use the directories below or email us and we’ll point you in the right direction.
Research on your own:
- Special Needs Alliance — national directory of attorneys focused on disability and public benefits law (note: no SNA members are currently located in North Dakota — you may need to work with an out-of-state member)
- Academy of Special Needs Planners — searchable directory of special needs planning attorneys
- State Bar Association of North Dakota — Lawyer Referral Service ($30/referral), attorneys pre-screened for good standing; call (866) 450-9579
- ND Protection & Advocacy Project — free disability rights services, SDM resources, and referrals; call (800) 472-2670
- Legal Services of North Dakota — free legal assistance for qualifying families; call (800) 634-5263
Not sure what to ask or what to expect? Our complete guide to finding an SNT attorney walks through the questions you should ask, the red flags to watch for, and how the process typically works.
Recent North Dakota Updates
Last reviewed: February 2026
- 2026: ABLE Age Adjustment Act raises disability onset age from 26 to 46, expanding eligibility significantly. ND residents use out-of-state ABLE plans.
- 2025–2026: SB 2029 creates new Office of Guardianship and Conservatorship — independent entity with licensing, registry, and oversight powers, operational by spring 2026.
- 2025: New Autism Spectrum Disorder Medicaid waiver launched (birth through age 20, 30+ slots). Medically Fragile Children’s waiver expanded.
- 2024: Governor Burgum expanded Olmstead Commission membership and role. SSA food rule changed — trusts can now pay for groceries without reducing SSI.
- Ongoing: ND HHS five-year plan public comment for DD council (2027–2031) open through March 2026. DOJ settlement compliance monitoring continues for LTSS transformation.
Laws and programs change. If you spot something outdated on this page, let us know at randy@specialneedstrustbystate.com — we review every correction and update promptly.
Last updated: February 2026. I review North Dakota’s rules quarterly and update this page whenever regulations change. Bookmark it.
Go Deeper: Comprehensive Special Needs Planning Guides
Your state rules matter — but the planning doesn’t stop there. These guides cover everything you need to protect your family:
| Special Needs Trusts: The Complete Guide | Types of trusts, setup process, costs, trustee selection, and the mistakes that cost families everything |
| ABLE Accounts Explained | Eligibility (2026 age expansion), contribution limits, qualified expenses, and state program comparison |
| Government Benefits: SSI, SSDI & Medicaid | How benefits work, coordination with trusts, work incentives, and the age 18 transition |
| Funding Strategies | Life insurance, gifts, settlements, retirement accounts — how to actually fund your plan |
| Letter of Intent | The document that tells future caregivers who your child really is — section-by-section guide |
| Life Planning: Guardianship, Housing & Transition | Guardianship options, housing choices, the age 18 cliff, and employment |
| Parent Journeys | Real questions and experiences from families navigating life with a special needs child |
| Find a Special Needs Trust Attorney | Trusted directories, questions to ask, red flags, and what to expect from the process |

